Arrow Left COVID-19 related data initiatives

Collections - BBMRI.nl Catalogue

The BBMRI.nl Catalogue contains a large overview of samples, data and biobanks available in the Netherlands. Collections with COVID-19 relevant information are marked with a ‘COVID-19’ filter to make ongoing research, available resources, and collaboration opportunities clear to researchers.

If you wish to submit your new COVID-19 collection, please use our

Webform for new COVID-19 collections

If you wish to inform others that your existing collection in the BBMRI-nl Catalogue has COVID-19 relevant information or services, please use the

Webform for existing COVID-19 collections

Collections in the BBMRI.nl Catalogue are easy to find for researchers all across Europe as the content is also made available through the BBMRI-ERIC biobank directory. Read more about our collaborative effort here.

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    CovidPredict: central national patient database

    Doctors and researchers from Amsterdam UMC and Maastricht UMC+ started a consortium to centralize the collection of data of COVID-19 patients. The consortium has grown rapidly since the start of the project, with numerous new hospitals, clinicians, and researchers joining the team every week. The available data has grown rapidly.  

    By collecting and analyzing data from COVID-19 patients that have already been admitted to Dutch hospitals, we can better understand the disease and help determine who should receive which treatment and care and when.

    It is supported by the Dutch Society of Intensive Care (NVIC) and the NICE foundation (Stichting Nationale Intensive Care Evaluatie).

    https://covidpredict.org/en

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    CAPACITY registry

    CAPACITY is a registry of patients with COVID-19 across Europe and has been established to answer questions on the role of cardiovascular disease in this pandemic. It is an extension of the Case Record Form (CRF) that was released by the ISARIC (International Severe Acute Respiratory and Emerging Infection Consortium) and WHO (World Health Organisation) in response to the emerging outbreak of COVID-19.

    The aim of CAPACITY is to collect data regarding the cardiovascular history, diagnostic information and occurrence of cardiovascular complications in COVID-19 patients. By collecting this information in a standardized manner, CAPACITY can aid in providing more insight in (1) the incidence of cardiovascular complications in patients with COVID-19, and (2) the vulnerability and clinical course of COVID-19 in patients with an underlying cardiovascular disease.

    Contact: Info@capacity-covid.eu

    More information

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    Lifelines coronavirus study

    The Lifelines biobank has started a study on the risk factors and spread of the Corona virus. Participants of the Lifelines and Lifelines NEXT coronavirus study receive weekly questionnaires. The questions pertain to COVID-19 related symptoms, comorbidity and also psychosocial wellbeing.

    Lifelines invites other biobanks to use the Lifelines questionnaire as this might help to harmonise efforts and ease meta-analyses in the near future. Many other biobanks have already shown interest in the questionnaire. If you would like to use the Lifelines questionnaire, please contact the programme manager of the Lifelines Corona Research project: Jackie Dekens (j.a.m.dekens@umcg.nl)

    The Lifelines coronavirus study is a joint initiative of the University Medical Center Groningen, the University of Groningen, the Aletta Jacobs School of Public Health and the Lifelines biobank.

    More information

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    ERA-EDTA database for COVID-19 infected kidney patients

    The ERA-EDTA Council has decided to establish a European database that collects granular individual patient data of KRT patients with COVID-19. This database should allow early detailed analysis to achieve insight in the patient and treatment characteristics that are related to outcome. We hope that such knowledge can help to improve their prognosis by intervening on modifiable risk factors. The database is meant for European patients living with a kidney transplant or on dialysis, who are COVID-19 infected, whether they are admitted to hospital or remained at home.

    Contact: covid.19.krt@umcg.nl

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    Dutch Clinical Research Foundation (DCRF) inventariseert knelpunten voor klinisch onderzoek met enquête (available in Dutch only)

    De huidige crisis ten gevolge van de uitbraak van het virus COVID-19, zorgt immers voor nieuwe en onvoorziene knelpunten bij het klinisch onderzoek in Nederland.

    De Dutch Clinical Research Foundation (DCRF) wil zich echter ook nu inzetten voor het inventariseren van knelpunten bij het opzetten, uitvoeren en publiceren van klinisch onderzoek. 

    Om de voortgang en de kwaliteit van klinisch onderzoek in de toekomst veilig te stellen, heeft de DCRF een COVID-19 kernteam opgericht. Het kernteam heeft in overleg met vertegenwoordigers van de aangesloten koepels een enquête voorbereid, met het doel inzicht te krijgen in deze knelpunten. Met de resultaten wil het team vervolgens kijken welke activiteiten nodig en mogelijk zijn om de knelpunten op te lossen en de aanpak daarvan te harmoniseren.

    Heeft u de enquête nog niet ontvangen, maar wilt u hem wel graag invullen, vraag hem via e-mail aan bij secretariaat@dcrfonline.nl.

    More information

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    CWZ Nijmegen COVID-19 collections

    Currently CWZ participates in:

    1. Collection of standardised clinical data on patients hospitalised with suspected or confirmed infection with novel coronavirus (2019_nCoV).

    2. The BCG Corona study

    CWZ researchers and clinicians are currently setting up other studies.

    Contact: Sander Koëter, orthopedic surgeon, manager research support office CWZ

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    COPP study : a national registration study into COVID-19 in children

    The goals of the study are;

    1. Describing clinical manifestations of COVID-19 in children who are presented or admitted to hospital;
    1. Describing the course, treatment (including supportive treatment) of the disease;
    1. Determining risk factors for severe manifestation of the disease;
    1. Characterize the body’s reaction to infection with SARS-CoV-2;
    1. Describing inter-regional treatment variations in Dutch hospitals.

    This is a countrywide multicenter, observational prospective cohort study.

    Contact: info@covidkids.nl

    More information

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    Living and Working in Coronavirus Times Project and Survey

    WageIndicator Foundation is surveying / interviewing people in 140 countries to explore the COVID-19 effect on jobs, workload, working from home, job losses, and working conditions. Control variables relate to occupation, firm size, employment contract, household composition, life satisfaction, and Corona-cases in respondent’s networks at home and at the workplace. The surveys are in the national language(s). Given that a random sampled global survey is beyond budget and impossible in a brief time frame, the survey is a volunteer web-survey with snowball recruiting through many frequently visited websites with high quality search engine optimization and through social media. The results are shown in maps and graphs, updated on a daily basis. Researchers from CLARIN ERIC, SSHOC Project and the University of Amsterdam are cooperating in the project. In addition, WageIndicator collects for a few countries the COVID-19 response of companies, and has developed a data collection regarding country-level measures related to work and employment.

    The surveys are accessible here (select a country and a language in case of multilingual countries):

    The codebook is available here.

    Contact: Kea Tijdens

    More information

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