Best practices for data sharing policies
Health-RI plans to publish several best practices for data sharing policies and templates that can be used as a starter kit for new COVID-19 studies that want to make their data available to other researchers. Download a first draft of a guide to data governance in COVID-19 studies (in Dutch)
COVID-19 – Interoperable Case Record Forms
If you want to collect clinical data, the WHO case record forms should be used. The March 23rd 2020 NOVEL CORONAVIRUS (COVID-19) - RAPID VERSION can be downloaded here. Castor has made these forms available in xml format, ready to use in any research data capture system of your choice. If needed, the iCRF generator can be used for conversion.
Data created with these Case Record Forms will be made interoperable in the future. An initiative from VODAN, together with GO-FAIR, AmsterdamUMC (CovidPredict: central national patient database), RadboudUMC and a Health-RI team, are working on a semantic data model and code book to make that possible. They are also expanding the Case Record forms with specific parameters for a.o. radiology related data (e.g. CORAD scores). The latest version of this model can be found in BioPortal or Github.
Another initiative to make COVID-data interoperable
The European Health Data and Evidence Network EHDEN has launched a COVID-19 Rapid Collaboration Call to map COVID data to the OHDSI OMOP Common Data Model. Initial work can be found at github OHDSI COVID landing page.
If you have any questions, please do not hesitate to ask Health-RI.