The Handbook for Adequate Natural Data Stewardship (HANDS) provides researchers at the eight Dutch University Medical Centres (UMCs) with guidelines on data stewardship as well as lists of practical steps to take for each stage of the research data life cycle. A toolbox refers to additional expertise and resources within or outside your UMC. It offers information for all people involved in data stewardship, from researchers and data stewards, to policy makers and developers of IT infrastructure.
The content of HANDS is continually improved and updated. Please mail your suggestions for improvement at firstname.lastname@example.org.
Every UMC has its own formal policy on data stewardship (e.g., in the Research Code). The deans of the UMCs have agreed to base their formal policies on the shared guidelines described in HANDS. HANDS does not prescribe what infrastructure every UMC should use or apply but formulates guidelines for developing general infrastructures. Every UMC is advised to set up a central internal helpdesk for questions about data management and data stewardship.
Data stewardship refers to sustainable care for research data as integral part of the research process. It covers all actions necessary to make digital research data Findable, Accessible, Interoperable and Reusable (FAIR) during and after your research project, including data management, archiving and reuse by third parties.
Adequate data stewardship is a prerequisite for high-quality science.
- The Netherlands Federation of University Medical Centres (NFU) recommends that research data stewardship at the eight Dutch UMCs is compliant with HANDS.
- HANDS aligns with the Netherlands Code of Conduct for Academic Practice, the recommendations from the Landelijk Coördinatiepunt Research Data Management (LCRDM), and guidelines that apply specifically to UMCs.
- HANDS is a national contribution to the worldwide Open Science ambition.
HANDS edition 2.0
The second updated edition of HANDS (2018) was written by a small team of the NFU Data4lifesciences programme. It was updated because of:
- new laws and regulations that came into effect;
- new insights into what issues an NFU (or UMC) policy on data stewardship should address;
- new answers to frequently asked questions, as a result of debate and progress made on this subject at UMCs, universities and other organisations in which several HANDS authors actively participate, such as the Landelijk Coördinatiepunt Research Data Management (LCRDM), the Dutch Techcentre for Life Sciences (DTL) and Health-RI;
- new developments in policies, tools, infrastructure and architecture at UMCs and universities.
Experts on specific subjects were consulted and feedback from researchers and support staff at UMCs was collected before publishing this digital version of HANDS 2.0*. For the section ‘Credits’ we made grateful use of the website of University of Utrecht.
Els Swennen, Pascal Suppers, Tom Delnoy: Maastricht UMC+
Petra van Overveld, Marco Roos, Sonja Meeuwsen: LUMC
Salome Scholtens: UMCG
Bert van Ooijen: Erasmus MC
Chantal Steegers, Klaudia Onnasch, Erik van Ieperen, Rudy Scholte, Jeroen Belien, Sander de Ridder, Ronald van Schijndel, Gepke Uiterdijk: Amsterdam UMC
Susanne Rebers: ELSI Servicedesk/NKI
Ingeborg Verheul: LCRDM
Jan-Willem Boiten: D4LS/Lygature
Petra van Overveld
Linda van den Berg
HANDS edition 1.0
The first edition of HANDS was written by members of the NFU data stewardship committee in 2014-2015 as part of the NFU Data4lifesciences programme. The preliminary first version was shared with all Dutch UMCs and a large number of national organisations during a consultation round in September 2015. The deans of the eight UMCs were requested to at least share this preliminary document with their local Security officer, Privacy officer (Data Protection Officer), Research Policy Advisor(s), several researchers, and several ICT specialists.
Linda van den Berg – Washoe Life Science Communications
Paula Jansen (secretary) – Erasmus MC, UMCU
Peter Doorn – DANS, KNAW
Rob Hooft – DTL
Evert van Leeuwen –Radboudumc
Leendert Looijenga – Federa
Barend Mons – DTL, LUMC
Arnoud van der Maas –Radboudumc
Ronald Brand – LUMC
Morris Swertz, Jan Jurjen Uitterdijk, Pieter Neerincx – UMCG
Jan Hazelzet, Linda Mook – Erasmus MC
Thijs Spigt – TTO, Erasmus MC
Evert Ben van Veen – MedLawConsult
Margreet Bloemers – ZonMw
Jan Willem Boiten – CTMM-TraIT
Cor Oosterwijk, Tessa van der Valk – VSOP
Jaap Verweij (chairman) – Erasmus MC
The following organisations were consulted:
- Centrale Commissie Mensgebonden Onderzoek (CCMO);
- Center for Translational Medicine (CTMM-TraIT);
- Dutch Techcentre for Life Sciences (DTL/ELIXIR-NL);
- Nederlands Normalisatie Instituut (NEN);
- Nederlandse Patiënten Consumenten Federatie (NCPF);
- Parelsnoer Instituut (PSI);
- Samenwerkende Gezondheidsfondsen (SGF);
- Vereniging van Universiteiten (VSNU);
- Landelijk Coördinatiepunt Research Data Management (LCRDM)
- 4TU Datacentrum (4TU/SURF);
- Data4lifesciences programme committee and operational board.