Arrow Left Home Data stewardship handbook (HANDS) 1. Definitions of data stewardship a. Why data stewardship b. FAIR principles c. Responsibilities 2. Data management plan a. General considerations b. Patient collaboration c. Data access d. Data management infrastructure e. Intellectual property rights f. Costs of data stewardship 3. Privacy and autonomy a. Informed consent b. Care and research environment c. Anonymisation and pseudonymisation 4. Collecting data a. Data re-use b. Selecting file formats c. Using a data capturing system (Clinical research) d. Security 5. Documentation and standardisation a. Basic documentation b. Metadata c. Data standards d. Monitoring and validation 6. Analysing data a. Raw data preparation b. Analysis plan 7. Archiving data a. What and how long b. Where 8. Sharing data a. General considerations b. Sharing with third parties c. Data publication Toolbox
