Vacancy: Data Portal Coördinator - Architecture

Health-RI is a Dutch non-profit foundation supporting a growing network of organizations to realize a national health data infrastructure for biomedical and health research and innovation. Health-RI has recently acquired significant government funding to establish a coordinated national data expertise and infrastructure network of FAIR-compliant regional nodes of organizations in healthcare and health research. Health-RI’s mission is to build an integrated health data research infrastructure accessible for researchers, citizens and care providers. The Health-RI team facilitates and fosters the optimal use of knowledge, tools, facilities, health data and samples to enable data driven health research and to accelerate sustainable and affordable personalized medicine and health.

The architecture team of Health-RI strives to make observational health data from the Dutch clinical practice available for research and innovation in a structured and responsible manner including methods for data linkage with new and existing research study data and national registries. This ambition requires an integrated IT architecture which incorporates the FAIR principles and ethical & legal standards by design. The design and implementation of this architecture will be done in an agile manner involving a national network of stakeholders. The architecture team is not only responsible for the design, but also for the technical implementation in close collaboration with specific use cases supported by Health-RI.

Your role

You are responsible for the requirements gathering and design of an overarching national meta data portal that makes Dutch health data findable and accessible for research purposes. You are the coordinator and active participant of a nation-wide team consisting of local data portal coordinators in each of the Health-RI nodes (mostly UMCs) as well as individual portal experts who will jointly work on the design and implementation of the Health-RI data portal. Furthermore, you are responsible for progress in this team and for the implementation and testing of various versions of the Health-RI data portal in close collaboration with the Health-RI Technology Lead who will be leading the development team. You will be a member of the central Health-RI architecture team overseeing the consistent design and implementation of all Health-RI infrastructure components. You see to a close alignment with the other Health-RI themes to ensure the Health-RI data portal really can service its objective as "spider in the Health-RI web".

Your profile

You have at least a relevant MSc, a PhD is preferred. You have your background in medical informatics, bioinformatics, medicine, biology, or a similar life sciences education. Your domain expertise in (health) data portals and knowledge and understanding of clinical data standards such as FHIR, SNOMED CT, OMOP, etc. is a must. You have experience with requirements gathering and prioritization, and you are able to translate those into formats digestible by software developers. Excellent oral and written communication skills in English are a must, preferably also in Dutch. You are willing and able to travel the country at a high frequency to connect to all Health-RI nodes and other relevant stakeholders. Experience with user interface design would be desirable.

We offer

You will be appointed at Health-RI, offering a flexible working environment. We offer you a role in our team that leaves ample room for your personal growth, embedded in a national and international expert network. Our office in Utrecht serves as your basis, where we usually convene as a team on a regular basis. Of course, in the pandemic, all of us are working from home, and we collaborate using online tools. In general, working from home for part of your time is a natural practice in our organization. For your projects you will also travel to meet and work with our partner groups across the life sciences and health domain. We offer you an appointment for initially 1 year, with the intention to extend this as a permanent position. Health-RI has a 38 hour working week and participates in the ABP pension fund. Your salary level is expected to be in VSNU scale 11-12, depending on your education and work experience. In addition you will receive 8% holiday allowance and 8% end-year bonus, following the labor agreement of the Dutch universities.

Please send your motivation letter and curriculum vitae to hr@health-ri.nl. For more information, please contact janwillem.boiten@health-ri.nl or rob.hooft@dtls.nl.