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Opening doors to P4 Health: participation
Public trust and societal involvement are crucial for the success of Health-RI.
Participation session chaired by Gerlof Valk (UMCU), with presentations by Peter Paul van Benthem (LUMC – Federation Medical Specialists), Lex Bouter (VUmc), and a discussion with fore-mentioned speakers and panelists Eric Vermeulen and Marieke Jansen, both Members of the Patient and Public Advisory Council of BBMRI-NL.
Health-RI and participation, the view of Ineke Hazelzet, MA Med, member of the Patient and Public Advisory Council of BBMRI
The BBMRI research programme includes a Patient and Public Advisory Council (PPAC). Hazelzet: “More involvement of healthcare users in research projects is important. Collaboration between representatives of all stakeholders on an equal basis is essential for valuable healthcare.”
Hazelzet believes the council gives healthcare users the opportunity to make themselves heard and to share their perspectives and ideas on research projects. “A healthcare user as a co-researcher in a research group within Health-RI adds to the quality of research. They can ask relevant research questions that help to include the user perspective.” Patients and healthcare users will benefit from the start. The PPAC will be incorporated into Health-RI.