BBMRI.nl
Documents & protocols
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Sustainable biobanking
Biobanks must balance long-term storage of samples with responsible use of energy, resources, and funding. Sustainable biobanking focuses on efficient infrastructure, ethical governance, and maximizing the scientific value of samples to ensure lasting benefits for research and society.
9 recommendations for sustainable biobanking
Sustainable biobanking: The financial dimension
Good Practices in Sustainable Biobanking A Case Study Analysis
Randvoorwaarden voor sustainable biobanking in Nederland (presentatie)
Report on BBMRI-NL Workshop: Sustainable sample/data infrastructures
Creating an Environment for Sustainable Biobanking in the Netherlands
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Patient and Public Involvement and Engagement (PPIE)
Biobanking and Patient and Public Involvement and Engagement (PPIE) are closely connected, as involving patients and the public helps ensure that biobank research aligns with societal values and expectations. PPIE strengthens trust, improves consent processes, and supports transparent governance of how biological samples and data are collected, stored, and used.
- Biobanken quiz for kids (ppt)
- Biobanken quiz for kids (pdf)
- Coloring picture for kids
- Example YOU krant 8-14 jaar
- Example YOUth quiz
- Example YOUth flyer photostory
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Incidental findings
Biobank research can reveal incidental findings relevant to participants’ health, but in Netherlands practices for reporting these findings are inconsistent, leaving uncertainty about researchers’ responsibilities. This guide provides ethical guidelines, minimum requirements, and best practices to help researchers and institutions manage and communicate such findings effetively.
Guide to the detection, management and communication of incidental findings for biobanks in BBMRI-NL
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Data Stewardship
Effective data stewardship ensures data quality, privacy, security, and appropriate access, enabling long-term, trustworthy use of biobank resources in research.